5/3/2015-Stent
procedure got called
off permanently due to once again suffering from intestinal
blockages.
Last hope for any type of procedure
intervention will be in late
June.
#HOPE
6/4/2015-Rescan
set
for later this month along with
finding out if my surgeon's colleague is willing to at least
biopsy my largest tumor which
has been giving me
nothing but one complication hell after another...
7/4/2015-HAPPY
4TH
OF JULY! Talking about celebrating independence!
For me...medical independence from
the repeat scans and other
tests.
Yep, unfortunately
the medical game of finding answers that were never there, more
like, a cure that was never there, I was
released with no hope. Complications
which are expected to continue will only be treated via outpatient until stabilized
to
go back home.
Sometimes... It is,
what it is.
8/4/2015-This
is
'Bucket List' month! After a long
decade absence from the beach, I am determined
to finally live my long over due dream
of
placing my feet
back on the sand. CAN'T
WAIT! :)
9/2/2015-Beyond
blessed
to have been given the chance to be one with the ocean. After
a decade long wait, I finally
was able to place my feet in the sand last month.
Sadly, we arrived
back in town only
to become very ill 24 hours later
and
was diagnosed with recurrent Autoimmune
Meningitis. Life is sure filled uncertainty,
but determined as ever
to beat this latest
battle! AMEN.
10/1/2015-Still
on the mend recovering from recurrent Autoimmune
Meningitis, but I am still determined to
make another full recovery!
A long month is ahead for this
gal when it comes to further and necessary
medical testing. Nothing says, "Take
it EASY, R-E-L-A-X
first before the
medical games start back up again like a last trip relaxcation to
see the beautiful ocean and wildlife.
11/3/2015-Sadly
due to still being on the mend from Autoimmune Meningitis we were unable
to make it to our last
relaxcation for the year.
Shockingly, we just found out today
that my internal
organs are now suffering from the
effects of my largest and first
initial
tumor
that was discovered 18
months ago. We went from a year prognosis,
to now
3 months. I can't begin to explain how many
emotions I am going through right now, along
with Eric who
has been my #1 supporter and
shoulder to lean on. Feeling absolutely
l-o-s-t.
12/5/2015-Not a
good way to start off the holiday season with almost
a weeks worth of nausea, pain and
vomiting. I was hoping to actually
enjoy
this year and all
the holiday festivities in the city, but looks like
I will be taking
the ole GP and my
tumors along
for
the ride. Crossing my fingers for some relief and QUICK so we can enjoy some
festive
fun!
:)
1/4/2016-HAPPY
NEW
YEAR 2016! I ended my year 2015 with the most important
decision of my life after being asked for a 3rd time
to reschedule
a final surgeon meeting on 'if' the high risk/trauma
surgeon and his team would
honor a final surgical intervention.
After being asked a third time
last week to
once again reschedule,
I made an important and yet best
decision of my life to
finally free myself of the surgical rat race that
got me nowhere
for over the past 12 months. So...yes...the
tumor still continues
to grow, but now I can
finally focus precious time
on living
life, not continuing to put my
life into the unknown. If I beat
my 1 year initial
prognosis date
come next month, February, then everything
I am blessed with from God here on out is
GOLDEN
in my eyes! Amen.
2/5/2016-My
140
mile physical challenge for Cancer Awareness begins and I am determined
to pull
through my bad
days while embracing
my good
days in honor of
all patients
who fight the GREAT
fight! I have been given 3 additional
surgeon's to consult
with this month,
however
I am not
sure if
I will open another surgical rat race
door. I am at peace with what is and what will be, so at this
point I would
have to say, 'No.' Life goes
on and
I am hopeful for being blessed with
many more days ahead as I come up on
my 1 year prognosis date this month. Amen.
3/5/2016-So...
I might not had
been able to pull off the 140
miles for Cancer Awareness last month
due
to continued complications with my
largest
mass, but at least I was
able
to rack up close to 90 miles.
I plan on making up for lost time through out this
month
and finally achieve my personal best. It might not be such an easy task
when medical
odds continue to stack against
me, but
it's the effort and determination in the
end that
truly counts!
AMEN. I have yet to
have any success with any sort of
surgical
intervention and will officially top out at 13 surgeon
consultations
as of the end of this month. Never
say this
gal
didn't
give it
her all...
I gave it everything I had and then
some. Double AMEN!
4/14/2016-It
might
had
taken 13 surgeons and 15 months later,
but I FINALLY have the answers I
have been
longing for in regards to dealing
with
these gosh awful tumors, constant
lower pain, aggravated nausea and endless
hospital emergency room visits. I
now have a team
of highly trained
and very reputable
Oncologists, Radiology Oncologists and a few new surgeons.
More to come early next month
as I start my first round of radiation
treatments and new experimental Oncology treatment
medications. #FeelingHOPEFULLYBeyondLUCKY
5/2/2016-This month marks the start of many changes and a
battle that I have waited
for over the past 15 months. I officially
start my first
round
of radiation and Oncology treatments
in a few days. With a most recent scare of another
partial bowel obstruction
due
to the
largest
tumor continuing to cause serious complications, I can only
hope and pray that my amazing team
of Oncologists and
Radiology Oncologist's can
deliver
me a miracle. #ReadyForTheBATTLE
6/6/2016-Radiation/Oncology
treatments were brutal
and sadly
after
my final rescan
we quickly came to realize that the experimental treatments
failed
to even budge the largest tumor along with a
miraculous organ that regrew
from a single microcell and started
dangerously
re-functioning. I am still paying
royally
for the Oncology treatments and the
radiation treatments still have me
experiencing
some quite odd and
painful side
effects. Back to my new surgeons
#13 in a few
weeks.
7/6/2016-Unfortunately,
I had to let my lead Oncologist
go and make an appointment with
a new lead Oncologist
for later this month after far
too many
bad bedside manners.
This
last appointment
was our final straw and even Eric
found himself having
enough with the sly
comments
aimed
towards
us, my other Oncologist and new surgeons. Enough was far enough
and once again, a final
surgical
intervention is back up in the air
until
I see my new Oncologist...
8/3/2016-Here
I
am,
the surgical rollercoaster finally
made an abrupt
stop and there will be no further
surgical interventions. My new lead
Oncologist
made it very clear that
any surgical intervention would
be fatal.
As for now, I am officially
released
from the
behind closed Oncology society doors.
I will be rescanned every 3 months along with
labs, blood work. I am honestly
just trying
to get used to life doing another sudden change. Trying
to figure out what life holds for me knowing that
radiation
and
other
treatments failed is
a hard reality
to swallow, but I am one tough gal!
Where there is a will to live, BY
GOLLY! there will
be a way!
9/2/2016-I am officially
3 months post radiation and other
experimental treatments.
My next round
of rescans
will happen this month along with just
today, finding out more discouraging words from one single oncologist
who clearly doesn't believe in miracles
nor
the word
'HOPE.' I am not sure
what to expect, but I have no high expectations
on what is next to come.
All I know
is
that God will
lead me
the way.
*:)
10/3/2016-I can't
believe it! 2 years in the making and
we FINALLY landed ourselves a new home in a new
state, in a new
city! YIPPIE!
With
only a mere window
of medical
opportunity. Time to quickly scramble so we
can continue
to
fulfill our dreams~
:)
11/5/2016-We
are
officially new residences in the great state
of Indiana :) I have
already made my first
pit stop to the
emergency room
within the
first 3 days. When you
push your body beyond the limits.
It WILL push BACK!
12/2/2016-Making
lemonade
out
of a whole LOTTA
lemons this month! Our new home has
given us quite a few unexpected surprises. 11
months and counting
for this great lemonade
house-flip
in between treatments
and tumor rescans. HAPPY
HOLIDAYS...
HA!
1/3/2017-A
New Year 2017! Time for
changes. Positive
changes! Time
to
let it
go... Of what I can no longer control
with my health. Cancer treatments
failed.
My last and final Oncology
appointment
was last month, as told now to
just, let things be... What no longer
can be controlled
as well did not
respond
to treatments. A New Year
with letting
what can no longer be
controlled finally set free.
Time to put things in God's
hands.
Time
to refocus my energy on far
more happier
things in life.
2/4/2017-Ahhhh... February.... One
of my favorite months of the
year! Time to enjoy the
last month of beautiful
winter
weather with a humongous
box of Valentine's candy!
:)
3/4/2017-Time
sure does fly by!
Same holds true for
this new year as I get
ready next week for my rescan and labs.
I don't expect a tumor miracle, but I am
hoping for
continued
slow growth with
my tumors.
Fingers
and toes crossed for some
Luck of the Irish
this month! :)
4/3/2017-Decades later... Talking
about a JOURNEY, best seats in the
house, front-center,
lucky seat
11! What a great concert! I am
so proud
of myself, but
most importantly,
not giving up on living
life no matter
what obstacles I might
be facing. Don't
stop BELIEVIN!
5/3/2017-Can
you believe it? I have
made
it a full year, post-radiation therapy and other experimental
oncology treatments.
Reason to celebrate...
Most certainly!
I have learned so
much in a year,
not just medically, but as well
about myself.
The unfaltering
strength
within. The
most
important lesson
learned?
Life is far too short
to sweat the big and small stuff.
No matter
what life may throw your
way.
Find a reason to laugh and smile!
Each
and
every day~
6/2/2017-In
memory
of
our beloved Littleblue
after a brave battle with cancer.
Life seems
so unfair with
losing
another one of our
fur children.
God welcomes home another fur angel.
A piece of our heart
goes
with her. Littleblue
had just
recently celebrated her 10th birthday last week.
We
are completely heartbroken
and devastated.
7/3/2017-Welcoming
a special little one into our
family next month.
Sure
wish our beloved Littleblue
was here
to share
in the
love. But we have
signs all around
us that she is still here
with
our
little family in spirit. #Live-Love-Life
8/6/2017-If
you
need to find me
this month. On
my
good days, I will be working
on
helping Eric continue flipping
our house. A constant lesson
of learning
in process! The most
important
lesson so far that we both
have learned? Nothing
nor no one
in life
is...perfect.
9/3/2017-The
big
house flip project
continues this
month. Inside and soon to be outside!
It truly has
been
life changing
for both myself
and Eric. It has also
been
a huge blessing in disguise
helping
to keep my mind occupied
on
far
more happier, productive
days :)
10-2-2017-What
another major accomplishment
as we
celebrate our 8th
annual
huge Gastroparesis
Awareness Campaign event!
The 8th
annual, United
GP Walk. Walk-Run-Ride, a month-long
event
for the entire
month of October! Talking about...PROUD,
HONORED & BLESSED!
:)
11/3/2017-Another
year, another
reason to celebrate turning a year
younger. Yes! Most definitely
a year younger
since I
feel nothing
even close to
my actual
age.
Internally...that's
a far different
story...HA!
12/3/2017-Can
you believe we are
in the
last month
of 2017?!
December...
Christmas~YAYYY!
So
much has happened this year. Yet one thing is
for
certain.
It has been one HELL of a learning
experience!
CHEERS
to a
most fabulous
Christmas &
a most BEAUTIFUL new year!
:)
1/3/2018-Tis
a
New Year, 2018! Tis a new year to
take time out
for #1... YOU! I have
a lot of goals
for myself this year. A year of many
silver
linings! A chance
to do everything
in my power to embrace
nothing but
sheer...
HAPPINESS!
:)
2/4/2018-Back
to finishing up the
last
of our
great repairing,
repainting
and remodeling projects in order
to have our home ready to place
for sale by
early this spring! West
bound...
here
we come NEVADA!
YAYYYY!!
3/3/2018-Luck
be a Lady and that
Lady
be ME! I
just
completed
my third
surgery in
less than two months
of this new year. Glad to have found
surgeons
that
really do listen to
the
patients wishes. It's been brutal...
but having
more
pieces
to the medical puzzle has made it worth
the pain!
Upward
& Onward!
4/4/2018-
I can't
believe
that spring
is
here
and summer
is just right around the corner!
We are doing our very best
to stay
on schedule
with
our final BIG MOVE
out west
to Nevada. Early summer would
be most ideal for our
little
family...
but another hurdle with
my health
is
doing
it's
best to get
in the
way.
There
is no need
to get
upset any
further
on what we can no
longer control
as
we
do
our best
to still prepare
for the big move.
5/19/2018-Who
hasn't
visited the Gastroparesis
Awareness
Campaign website?> 6/10/2018-Celebrating
so much this month!
The gift of
life
and
the gift of love
while
celebrating
our
anniversary!
Yes...
I am one very LUCKY in
LOVE gal~
7/12/2018-Taking
a chance at going
back to work...
from home. Not sure
if
this
is a good
thing or a bad thing. Only time
will
tell
but
at least I can say that I tried.
Amen.
8/5/2018-It's
that time again...
BACK TO
SCHOOL!
Hehehehehe!
My stepson
will
be in the
6th grade already...
geez
time sure does
fly by doesn't
it!
9/5/2018-PUMPKIN
PUMPKIN
PUMPKIN!
September
means
the
soon-to-be
my most FAVORITE time
of the year!
10/6/2018-Join
us for the
9th annual
"UNITED
GP WALK"
WALK-RUN-RIDE
one person
at a time
for GASTROPARESIS
AWARENESS~
11/11/2018-What
a most BEAUTIFULLY
PERFECT BIRTHDAY
sharing
it with my little family...Let's
not forget
the early morning SNOW!
Beyond...BLESSED.
12/2/2018-I
am SO READY for a very
special
MERRY CHRISTMAS!
1/3/2019-**CHEERS
TO A NEW YEAR
2019 &
A NEW
HAPPIER YOU!!**
2/7/2019-Who
says you still
can't
celebrate
Valentine's
Day with
Gastroparesis?
Ummmm...DUH...No One
;)
3/5/2019-May
the Luck Of The
Irish
bring nothing
but GP-Free
days
for everyone through out
the
entire
month of March!
4/4/2019-Can
you believe
it
is already
SPRING?!?
Time for light,
airy
clothing,
plenty of sunlight
and of
course CHOCOLATE Easter
GOODIES!!
:)
5/5/2019-May
you have many
GP-FREE
days
during
the entire month of May
:) Project time outdoors
and lots
of gardening for
our little family!
6/3/2019-Tis
the month
of wedded
bliss! I can't wait
to celebrate
our wedding
anniversary
this
month!! A much needed
getaway...
R&R~
7/2/2019-Let
the
heat begin which I have a
hunch
can't end
soon enough!
Illness,
heat
with humidity surely never
does mix
does
it?..
8/3/2019-Can
you
believe
that the 9th annual United GP Walk is officially
less than
2 months
away?!? Time sure does fly by
in a
wink of an eye!
9/3/2019-We
are OFFICIALLY one month
away from
the
start of the 9th annual, "UNITED
GP WALK-WALK,
RUN, RIDE." I'm super
EXCITED aren't you?!
10/6/2019-Here's
wishing everyone picture
perfect
weather for the 9th annual
UNITED GP WALK through
out this entire month of
October!!
:)
11/19/2019-Here's
wishing everyone a very happy
GP-FREE
Thanksgiving *:)
12/4/2019-Can
you believe
it?
CHRISTMAS
IS HERE!!
Merry Christmas
& a very
GP-FREE, HAPPY New Year 2020!
1/5/2020-New
Year...New YOU! Cheers to making
this your
BEST GP-FREE year yet!! Get
out there and turn your dreams into
REALITY!
2/14/2020-ENJOYING
THE
SWEETEST
TIME OF THE YEAR...I love
the month
of Valentine's Day, don't you! XOXOXO~
3/3/2020-I can't believe that it's been 16 years
since my initial Gastroparesis
diagnosis!
Less than 1.5% gastric emptying left
in my
stomach which ended up causing further problems
with an extremely
delayed GI
tract,
intestines. The knowledge that I can give to others is to always
stick with trial & error when it comes
to what works best for you! We only come around
once in this body...NEVER give up
because Life truly is
WORTH fighting
for!! *:)
4/1/2020-I sure wish it was a big April Fool's Day
joke, but it isn't. Praying for all
around the world and your safety during
this sad time in everyone's life.
5/3/2020-Celebrate Mother's Day with ALL of your SPECIAL
loved ones!
6/25/2020-Summer
is in the air & so is
the time to get outdoors and catch some rays! Release all that extra baggage off your shoulders
and just be...F-R-E-E :)
7/11/2020-Ready for celebrating some INDEPENDENCE
which means having a good day with family and friends XOXOXO
8/15/2020-Can
you believe that we are going into a virtual COVID-19 year within the school districts all around the world? What
a crazy end to such a life changing pandemic.
9/5/2020-Do you have your masks, gloves, sanitizer
or just staying home to brave the never ending pandemic all around the world.
And...one thought that GP was bad. Such a sad time, indeed.
10/15/2020-It's definitely going to be a one-of-a-kind of Halloween this year with
COVID-19. To give out candy...or not to give out candy seems to be the far bigger
question!
11/11/2020-Another
birthday means another year to be blessed to celebrate the gift of LIFE...Amen
:)
12/24/2020-It may be a unique Christmas this year, but never than less make sure to make
it the HAPPIEST yet! We are all blessed to be given the gift of life. Many blessings
to everyone...GP-FREE~
1/11/2021-A
New Year, a New President, however when does this pandemic ever, ever end? Home
bound again, sick as ever but staying busy which is always good for the mind, body
and soul.
2/5/2021-Here's
wishing everyone a super SWEET & GP-FREE Valentine's Day! Make sure to spend
some time spoiling #1~YOU!
3/1/2021-May
the LUCK O' THE IRISH be with you all month...many GP-FREE O' BLESSINS!
4/1/2021-Can
you believe Easter is here and a month of the most beautiful spring blooms, all for you to get out and enjoy during
your GP-FREE days :)
5/3/2021-Happy GP-FREE Mother's Day to
all the human & fur baby moms around the world!
6/7/2021-Half way point in this crazy post-Covid 19 year! If the changes aren't enough
for oneself... I can only imagine what the rest of this new way of life brings.
7/1/2021-How appropriate for a post-pandemic year
to be celebrating the freedom, gift and beauty of independence...LIFE.
8/7/2021-It will soon be time to turn over a new leaf,
as fall quickly approaches upon us. That can only mean one thing...UNITED GP WALK 2021!
9/2/2021-Totally welcoming the changes of the season... LOVE F-A-L-L & UNITED GP
WALK TIME! :)
